A lot has happened since last Tuesday. Adam had a feeding tube put in last Friday. He fought getting a tube until the minute they put him under. He has fought harder against the feeding tube than anything in the last two years. He is still complaining about the tube today. We are already getting more calories in him. He only weighed 122 pounds today but I'm sure he weighed less than that last Friday. He had about 1400 calories yesterday and by the time he goes to bed tonight he should have about 1800 calories. We are trying to get him on a schedule so that we can maximize the number of calories he gets. The tube is actually good as we can wake him up do a tube feeding and then he can go right back to sleep. Today he was already bugging the doctor about when he could get the tube out. The doctor told him that it's too early to bug him. After he gains some weight he can start bugging the doctor.

The mri today showed that the brain tumor has grown a little but the doctor said he was pleased that it wasn't bigger given that he hasn't had chemo in several weeks. He will probably be able to do avastin (chemo for his brain tumor) next week. He may have to wait a little longer for the other chemo drugs but we will work hard to get weight on him so he can get back to a chemo routine.

Dr. Cloughesy said that we are almost through all the hoops for Adam to get the brain cancer vaccine. Adam will have to undergo cytapheresis two different times to gather white blood cells to make the vaccine. This is something that Adam desparately wants so we will use this to get him to eat. Once the vaccine is made he will have to get a series of injections. This will be a piece of cake for Adam.

Adam has to go to the eye doctor tomorrow. His eyelid is looking much better but his vision is still not very good. We will have a better idea of how he's doing after tomorrow.