Adam's health has steadily declined over the last week. We called Hospice today and will follow up with them tomorrow. They will most likely bring over a hospital bed tomorrow and take over with the management of Adam's pain. Adam's spirits and sense of humor are still there. He played a mean game of Dungeons and Dragons, with Bill's help, against Mac, John, Bill and family friend John Garrison. Bill said Adam made several snide comments that cracked everyone up. John and Mac are taking the news very hard. They get comfort from the dog. Poor Jack will probably be bald by the end of the week from all of the petting. Thanks to everyone for all of your support.
Monday, September 29, 2008
Friday, September 12, 2008
It has been a busy week for Adam. On Monday he had a PET scan and a CAT scan. Tuesday he had an MRI, blood work and a doctors appointment. The PET scan showed that the tumors are only slightly bigger, good news. The MRI shows another tumor towards the back of the brain where a vein that takes blood away from the brain, splits, and then drains into the neck. This tumor is starting to block blood draining out of the brain. Adam is seeing the radiation oncologist on Tuesday to see if radiation can be done on this tumor. He was so sick from the last round of chemotherapy that Dr. Cloughesy put off his chemotherapy for a week. The vaccine is SUPPOSED to be at UCLA next week so hopefully that will arrive and Adam can get the shot.
Wednesday Adam had his first physical therapy appointment. The physical therapist massaged his neck and jaw and did some exercises with him. He has some exercises that he is supposed to do at home.
Our goal over this next week is to fatten him up and work on his jaw exercises.